Saturday, February 21, 2009

Medical Update



Another day on the rollercoaster ride of the NICU. Callie's heart problem, Patent Ductus Arteriosus, is becoming more of an issue. They gave her one round of medication hoping to close the duct, but it didn't work at all. They have started her on a different type of medication and have one more round tomorrow and they are hoping that this will work for her. They will do a repeat Echo Cardiogram on Monday or Tuesday to see if it worked. If it doesn't, it looks like we are looking at heart surgery. We are praying that her medication will work, because surgery means having to transport her to another Hospital (Johns Hopkins or University of Maryland) plus surgery on a 1lb7oz baby.

They warned us that although her lungs are functioning well at this point, there is a good chance they will start to deteriorate in the coming days and weeks. This is from the ventillation and the Patent Ductus Ateriosus. Despite these issues, her temperment is great! She is still as fiesty as ever. And has been enjoying her "chill" time over the past couple days.

Thank you to everyone who is supporting us through thoughts and prayers. Your continued support means the world to us.

11 comments:

  1. Here's praying that God finds it right to spare Callie any more trauma and let's the new medication work. Let's keep those prayers coming, everyone!!!

    Love, Bev & Bill

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  2. Marci and Lee,

    We're praying extra hard that the medication works this time and the valve closes. I've heard that sometimes visualizing these kinds of things can actually "will them" to happen. So, we'll be imagining Callie's valve closing all on it's own without the surgery!

    I show Jack pictures of Callie every day. Today when he saw her picture he said "she's going to make a great cousin." I agree!

    We love you.

    Love,
    Kim and Jack

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  3. To our little miracle,

    Hold on tight to life little Callie. Your Great-Grandma and Great-Grandpa Robinson are praying for you every day and sending you lots of love. Lent starts on Wednesday and Grandma will say an extra rosary for you each day. Keep fighting hard little Callie, we love you and are so happy you are part of this (sometimes crazy) family!

    Love,
    Great Grandma and Great Grandpa Robinson

    Dear Marci and Lee,

    Keep strong and ever hopeful. You have such a little fighter to be so proud of. Our love and prayers are with you always even though we are not there to encourage you to be strong. We love you both very much.

    Mom and Pa

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  4. We're thinking positive thoughts over here that this medication works and Callie's heart gets better without surgery. Glad to hear she's fiesty just like her mom. That fighting spirit will help get her through. You guys are so strong, you are in our thoughts constantly and we love you.
    -Alison & Brad

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  5. that a girl...just chill and pose for pictures like you have been! you make us all smile every day! praying that your heart (tiny, yet so big already) closes up. we want you to stay just were you are and continue your progress. keep fighting little lady:) love you!

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  6. What a sweet little baby girl. It is easy to see where she gets her strength. You are very special, please take care of one another. We are praying for all of you and especially that Callie's new medicine will work. With love and hugs.

    Don, Lisa and Dean

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  7. One more day and all the well wishes and prayers keep pouring in. Lots of love for Callie from all over the place. Congrats on opening your eyes, Callie. Give Mommy and Daddy a big wink from us. Lots of love - the Howards.

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  8. We are praying that the new medicine will work. We are keeping the faith that God will spare our little Callie a surgery.

    We love you all.
    Rick April Matt

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  9. What a beautiful daughter you guys have. We are hoping that the new medication works. Keep up the faith because she can feel it coming from you both. She is lucky to have such loving parents. We pray for her everyday.
    Love, The Rincks

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  10. Callie is such a strong person for someone so little! You are all in our thoughts, hearts, and prayers each day! Vincent and Jack cannot wait to meet this little girl who is going to teach them a thing or two! Love you guys!
    Chris, Kristie, Vin, and Jack

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