Sorry we weren't able to post yesterday, it was a busy day. Callie had a rough afternoon and evening, but was finally able to get some rest this morning. On my last post, we had mentioned her next challenges...well it appears that one is on us now. Back when Callie was a few days old, she had a intraventricular hemorrhage, or brain bleed. These are fairly common in premature infants. What can happen over time, which they follow with head ultrasounds, is hydrocephalus. So the pressure in her head is building and they want to relieve it both for her comfort and also to allow her brain to grow. Because of her size, there are not a lot of options. The best one now, according to the consulting Pediatric Neurosurgeon at Johns Hopkins, is spinal taps. This procedure may allow time for the blood clots to clear by themselves and for the fluid pathways to open up. So, Callie got one today, and tolerated it well, but unfortunately, they weren't able to get any fluid out. So, they said they will probably try again tomorrow. If this doesn't work, there is a medication that can slow the production of spinal fluid, but the issue is it can mess with their triglycerides. It is scary, as everything seems to be these days, but we are continuing to try find the strength through our faith so that we can be strong through each new hurdle she faces. We are praying that the spinal tap tomorrow will be successful in relieving pressure and also that the clots will dissapate quickly. And of course, our little Callie is braver than Mommy and Daddy and continues to fight every step of the way!
On a lighter note, Daddy got to change is first diaper today!!
Way to go Daddy!!!!
ReplyDeleteLove Linda
A new challenge, but Callie's always up for it. Stay strong Marci and Lee.
ReplyDeleteWith love,
Phil and Delyza
Callie is one amazing child! Unlike the adults in her life, Mommy & Daddy included of course, she doesn't know how difficult her challenges are -- so she fights them with vigor and without fear. As she has for every day of her life, she teaches us yet again another valuable life lesson. Keep fighting, Callie, we continue to pray for you.
ReplyDeleteWe Love You Callie, Marci & Lee!
Bev & Bill
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ReplyDeleteWe've been following Callie's progress and have been so proud of your (and Callie's) strength in dealing with all the challenges you've been facing. Our prayers are with your family, and we hope to meet her this summer. Love, G & G Alford
ReplyDeleteCallie - Auntie Karen finally figured this out!!!!! You are so beautiful without your glasses. I mean, don't get me wrong, you are pretty with them on too but I just never get to see you without them. Maybe because they are the newest sunglasses out on the market and you are already like your mommy and auntie and want to show them off!
ReplyDeleteI did not like seeing you in all that pain on Thursday. I said lots of prayers for you and I know you will get through this next hurdle with your amazing strength. You are stronger and braver than any of us! I miss you everyday and can't wait to see you next!!!!!
We love you very much!!!!!
Karen, Josh, Travis and Carter
Callie - Stay strong little girl. You have proven to all of us what a fighter you can be. This is just the next hurdle to jump over. We have faith in you - you can do it!
ReplyDeleteEven though you are going through all of these obstacles you look stronger and stronger in each of your pictures that Mommy and Daddy post. You are a very brave little girl.
Look at all that blond hair!!
We love you,
Kim and Jack
XOXOXO
Hello Callie - our sweet little fighter. So many medical hurdles for such a tiny "munchkin." Keep fighting sweetheart. We send you so much love and many prayers - to Mommy and Daddy too.
ReplyDeleteLove you so much,
Great Grandma and Great Grandpa Robinson
Callie,
ReplyDeleteOur dear little one. You continue to impress everyone around you. You have also proven that you are up to the challenge.
I can definitely see from your latest picture, that you look a lot stronger. Continue to fight, and Mommy and Daddy continue to as well.
Love you all,
Rick, April & Matt
Callie, Marci, and Lee,
ReplyDeleteSara updated me on everything you're going through right now
Callie...after reading the pages, I have no doubt what a fighter you are little girl! Though it's been a while, unfortunately, since I've talked to your mommy, I've known her since I was a child myself. What I can tell you, she is a strong, caring, tenacious women. I can see already that you have gained these characteristics from your mommy, and I'm sure your daddy as well. Keep it up, as you're doing a great job.
Marci and Lee...you're in my thoughts.
Alison
Good morning Callie, Mommy and Daddy (it's Sunday now) and I am hoping today will bring a more comfortable day for Miss Caelyn. Callie looks stronger in each picture and we believe she will face this next challenge with all the stregnth and courage she has faced the past 17 days. We continue to think and pray for you.
ReplyDeleteLove, Sara & Mike
Marci, Lee, and Cutey Patootie Callie,
ReplyDeleteThe three of you (big mommy and daddy fighters and little Callie fighter) are always in our thoughts. Everyday we think about your trials and every hurdle that Callie successfully makes it through is an answered prayer for us all. She has been amazing so I know she is going to fight really hard through the next challenge and be just as successful as all the rest! I love you my new little family, So MUCH, and wish you continued strength every day!
Hannah, Joe, and Bailey
Marci, Lee, and Little Callie:
ReplyDeleteWe are hoping and praying that Callie will overcome this obstacle and continue to fight her challenges as she already has. We love today's picture. Please keep your heads high. This little angel is so inspiring, strong, and full of life. Know that we are thinking of you everyday and pulling for Callie every second! Stay strong Mommy & Daddy!
XXXX,
Dan & Meghan
"Every flower that ever bloomed
ReplyDeletehad to go through a whole lot of dirt to get there!"
Marci, Lee and Callie continue to stay strong through the dirt. Our thoughts and prayers continue to stay with you as you face each new challenge.
Callie with each picture you are blossoming into a beautiful little lady-just like your Mommy.
Love, Becky and Jason
what a sweet picture! you are a beautiful little girl!!!! congrats daddy on changing your first diaper...hope it was a good one:)
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