Sunday, March 8, 2009

Weekend Update


We have had a weekend of ups and downs. Callie came out of surgery very well. Mommy and Daddy even got to hold her for an hour Friday night. This is her looking up at Mommy while being held! Saturday morning was uneventful as well. Then Saturday afternoon Callie started having some more Bradys (where her heart rate drops) than usual. This has been pretty much going on since. They are not sure what is causing the change at this point. They are just in the process of eliminating causes. At this point, they suspect that it could just be her body getting adjusted to the change in pressure in her head from the surgery, it could be she needs another blood transfusion, it could be a brewing infection, or simply a result of her prematurity. They already did a head ultrasound and have determined that the reservoir is draining as it should be. I think Mommy and Daddy are more worked up than the doctors. We just want her to be able to feed and grow, which they are hoping to start again this week (possibly tomorrow). Also before surgery Callie was down to the lowest ventilator settings and the doctors said if she wasn't going to surgery they probably would have taken her off because her lungs have improved to the point where she could at least attempt breathing on her own, they hope once they get the Bradys under control they will be able to say bye to the vent too! Thanks again for everyones support!

10 comments:

  1. We are praying that her strength continues through all these ups and downs! You are constantly in our thoughts and prayers!

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  2. Mommy, don't those big eyes looking up at you make you melt? It's great to see her so wide eyed and alert.

    She pulled through the PDA and the hydrocephalus surgery like a trooper, so I'm sure she'll kick these Bradys!!

    I'm sure you're just counting the days until that vent comes out. We'll be counting too!

    We love you all so much.

    Love,
    Kim and Jack
    XOXOXO

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  3. Know that you are in our prayers through every step. Thanks for keeping us informed throughout all the ups and downs.

    With love and God bless,

    Phil and Delyza

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  4. Oh, one more thing. Thanks for the pictures... that's the cutest little nose!

    Phil and Delyza

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  5. Glad to hear her lungs are so strong and the reservoir is draining properly. Your little girl had a pretty big week, and hopefully she's just adjusting to everything and will get past the Bradys as she recovers and gains her strength. Watching her so far, it seems she can do anything, so I have endless faith.
    Miss you, love you, and thinking of you all the time,
    Alison

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  6. Just a step back. Life its self seems to be two forward and one back. She has done an amazing job jumping hurdles, so I am not too worried about the next one.

    I am hoping that she (Mommy & Daddy included) can get some well deserved rest this week. She must be looking forward to Mommy's milk to make her bid and strongER.

    Love you all,
    Rick, April & Matt

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  7. She is getting cuter by the day!! Her features are really starting to show. We are thinking about you and praying for your family everyday!!!Lots of love!
    Simonne, Rob, Robbie & Lexi

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  8. You all are still in my thoughts and prayers. Stay strong!

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  9. I'm so glad to hear that Callie's surgery went well. She has been such a spirited little fighter! Hopefully those brady episodes will self resolve and she can get off of the vent soon. That will be a huge milestone!

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  10. I'm reading this at work and just found out that I work with Ken, the paramedic who transported Callie from St. Joes to Sinai a few weeks ago. He recognized Callie's name as I was reading the latest updates. It is such a small world :)

    Stay strong Callie~ I can't wait to read about your mommy and daddy hearing you cry when your breathing tube comes out!!!

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